Poland signed up as a member

The ten members are delighted that Jedni na milion – Stowarzyszenie pacjentów z PNH (One in a Million – PNH Patients Association) from Poland has signed up as a member of the PNH Global Alliance. During our virtual meeting on October 23, 2021, we have met the representative of our new member. The Alliance is […]

Two new members

The eight members are delighted that AAMAC from Canada and PNH Ukraine have signed up as members of the PNH Global Alliance. During our virtual meeting on July 16, 2021, we have met the representatives of our new members. The Alliance is in contact with more countries who have shown interest to join.

US signed up as a member

The seven members are delighted that AAMDSIF from the US has signed up as a member of the PNH Global Alliance. During our virtual meeting on March 26, 2021, we have met the representative of our eighth member. The Alliance is in contact with more countries who have shown interest to join.