FUNDING

Without funding we would not be able to do all our voluntary work. Our funding sources are membership fees, donations, consultancy fees, and grants.

Funding received

2022Swedish Orphan Biovitrum AB (Sobi)Layout and printing of PNH Global Alliance leaflet500 €
2023Novartis Services, Inc.PNH Global Awareness Campaign12798 €
2023Novartis Services, Inc.PNH Advocate Development Program31158 €
2023
Amgen, Inc.PNH Global Awareness Campaign12798 €
2023Amgen, Inc.PNH Advocate Development Program31158 €
2023
Hoffmann-La Roche AGPNH Global Awareness Campaign12798 €
2023Hoffmann-La Roche AGPNH Advocate Development Program31158 €
2023
Regeneron Pharmaceuticals, Inc.PNH Global Awareness Campaign12798 €
2023Regeneron Pharmaceuticals, Inc.PNH Advocate Development Program31158 €
2024
Alexion Pharma GmbHPNH Global Awareness Campaign12798 €
2024Alexion Pharma GmbHPNH Advocate Development Program31158 €
2025Novartis Services, Inc.Global PNH Advocacy Forum40,000.00 €
2025
Amgen, Inc.Global PNH Advocacy Forum40,000.00 €
2025
Alexion Pharma GmbHGlobal PNH Advocacy Forum40,000.00 €
2025
SobiGlobal PNH Advocacy Forum30,000.00 €
2025Hoffmann-La Roche AGGlobal PNH Advocacy Forum20,000.00 €
2025Regeneron Pharmaceuticals, Inc.Global PNH Advocacy Forum10,000.00 €