Funding

Without funding we would not be able to do all our voluntary work. Our funding sources are membership fees, donations, consultancy fees, and grants.

Table of grants received

Year	Company	Use	Amount
2022	Swedish Orphan Biovitrum AB (Sobi)	Layout and printing of PNH Global Alliance leaflet	500 €
2023	Novartis Services, Inc.	PNH Global Awareness Campaign	12798 €
2023	Novartis Services, Inc.	PNH Advocate Development Program	31158 €
2023	Amgen, Inc.	PNH Global Awareness Campaign	12798 €
2023	Amgen, Inc.	PNH Advocate Development Program	31158 €
2023	Hoffmann-La Roche AG	PNH Global Awareness Campaign	12798 €
2023	Hoffmann-La Roche AG	PNH Advocate Development Program	31158 €
2023	Regeneron Pharmaceuticals, Inc.	PNH Global Awareness Campaign	12798 €
2023	Regeneron Pharmaceuticals, Inc.	PNH Advocate Development Program	31158 €

We are a non-profit organisation, comprising PNH patient organisations all over the world

CONTACT

PNH Global Alliance
By Address: APN Backoffice BV
Postbox 91
4000 AB TIEL
The Netherlands

Chamber of Commerce number 75270854.
Info available at www.kvk.nl

Bank NL77ABNA0877597847

donate

The PNH Global Alliance receives €250 per year as membership fees. The members are mostly volunteer organisations with very limited financial resources, if any. The work of the Alliance is undertaken predominantly by patients, who do this voluntarily alongside their paid jobs. Contributions will enable us to continue to outsource some administration and pay for travel costs so that ideally we can meet in person once a year. A tax receipt is provided on request.