“Nothing about us should be without us” by Maria Piggin

On Rare Disease Day 2023, the Lancet Haematology journal published a patient voice piece written by Maria Piggin, Chair of PNH Support and PNH Global Alliance entitled “Nothing about us should be without us”. This piece talks about PNH and how Maria came to found PNH Support and the PNH Global Alliance and the work the Alliance is doing to achieve its objectives to benefit all PNH patients globally. 

Read the piece here