Collaborating for the benefit of PNH patients

Welcome to the PNH Global Alliance which is an alliance of global PNH patient organizations. PNH is an ultra rare non-malignant haematological condition.

the PNH Global Alliance

The Alliance has been created to bring our global community closer together so that we can collaborate and support one another. The PNH Global Alliance collaborates on common issues to benefit the PNH population, both in our individual countries and the PNH population globally.

latest news

US signed up as a member

The seven members are delighted that AAMDSIF from the US has signed up as a member of the PNH Global Alliance. During our virtual meeting

25 January 2021

Dealing with PNH

There are several ways to deal with PNH; standard therapy, other treatments, clinical trials and the way you live your life.

resources

codes of conduct

stakeholders

membership

All patient organizations supporting patients living with PNH are eligible to join the PNH Global Alliance. Please contact us for more information

We are a non-profit organization, comprising PNH patient organizations all over the world

CONTACT

PNH Global Alliance
By Address: APN Backoffice BV
Postbox 91
4000 AB TIEL
The Netherlands

Chamber of Commerce number 75270854.
Info available at www.kvk.nl

Bank NL77ABNA0877597847

donate

The PNH Global Alliance receives 250 euro per year as membership fees. The members are mostly volunteer organizations with very limited financial resources, if any. The work of the Alliance is undertaken predominantly by patients, who do this voluntarily alongside their paid jobs. Contributions will enable us to continue to outsource our administration and pay for travel costs so that we can meet in person once a year. A tax receipt is provided on request.

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