Collaborating for the benefit of PNH patients

Welcome to the PNH Global Alliance which is an alliance of global PNH patient organizations. PNH is an ultra rare non-malignant haematological condition.

the PNH Global Alliance

The Alliance has been created to bring our global community closer together so that we can collaborate and support one another. The PNH Global Alliance collaborates on common issues to benefit the PNH population, both in our individual countries and the PNH population globally. 

latest news

Two new members

The eight members are delighted that AAMAC from Canada and PNH Ukraine have signed up as members of the PNH Global Alliance. During our virtual

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Dealing with PNH

There are several ways to deal with PNH; standard therapy, other treatments, clinical trials and the way you live your life. 

resources

membership

All patient organizations supporting patients living with PNH are eligible to join the PNH Global Alliance. Please contact us for more information