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FIND A PNH PATIENT GROUP
or Groups Supporting PNH Patients

Australia

PNH Support Association Australia Inc

Website l Email

Brazil

Association of Family Members, Friends and Serious Diseases (AFAG)

Website l Email

Canada

Aplastic Anemia & Myelodysplasia Association (AAMAC)

Website l Email

Canadian Association of PNH Patients

Website l Contact

China

Website
Wechat public platform: PNH病友之家 QQ
Group: 37143981 (Members only) – 187061197 (Non-member)

Email

 

Denmark

PNH Nordic

Closed Facebook group

England, Wales & Northern Ireland

PNH Support

Website l Email
Closed Facebook group

Germany

Stiftung Lichterzellen

Website l Email

Aplastische Anämie & PNH e.V.

Website l Email

Hong Kong

PNH Group (PNH 病人權益關注組)

Facebook Page

India

PNH Patients Support-India

Closed Facebook group

Ireland

Closed Facebook group

Italy

AIEPN Onlus

Website l Email

Japan

PNH Club

Tel: +81-3-5651-7105
Fax: +81-3-5651-7106

Website l Email

New Zealand

PNH Support Association of NZ

Website l Email

Leukaemia & Blood Cancer New Zealand and  PNH Support Association of NZ

Website l Email

Philippines

PNH Support Group

Facebook page

Poland

One in a Million

Website l Email
Facebook page

Romania

The Association of Patients with Autoimmune Disorders

Website l Email

Russia

Another Life

Website l Email

Scotland

PNH Scotland

Website l Facebook l Email

Serbia

NORBs

Website l Email

Spain

Asociación de pacientes HPN España

Website l Email

Taiwan

Taiwan Foundation for Rare Disorders

Website l Email

The Netherlands

AA&PNH Contactgroep

Website l Facebook l Email

Turkey

PnhveAhüsileMücadeleDernegi

Website l Email

Ukraine

PNH Ukraine

Website l Facebook l Email

USA

AAMDSIF

Website l Email

Global Facebook Group run by U.S. patients

Open to all patients

Closed Facebook group