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Global PNH Patient Groups

Australia

Group Name: PNH Support Association Australia Inc

Website

Brazil

Group name: Association of Family Members, Friends and Serious Diseases (AFAG)

Website

China

Website

Email: info@pnhchina.org

Wechat public platform: PNH病友之家

QQ Group：37143981（Members only）187061197（Non-member)

India

For patients only:

Facebook group

Ireland

For patients only:

Facebook group

Japan

Group name: PNH Club in Japan

Tel：+81-3-5651-7105 Fax：+81-3-5651-7106

E-mail：pnh-support@pnhclub.jp

New Zealand

Group Name: PNH Support Association of NZ

Website

Romania

Group name: The Association of Patients with Autoimmune Disorders

Website

Serbia

Group name: NORBs

Website

Scotland

Group Name: PNH Scotland

Website

Taiwan

Group name: Taiwan Foundation for Rare Disorders

Website

Turkey

Group name: PnhveAhüsileMücadeleDernegi

Website

Global Facebook Group run by US patients (open to all patients)

Facebook group

We are a non-profit organisation, comprising PNH patient organisations all over the world

CONTACT

PNH Global Alliance
By Address: APN Backoffice BV
Postbox 91
4000 AB TIEL
The Netherlands

Chamber of Commerce number 75270854.
Info available at www.kvk.nl

Bank NL77ABNA0877597847

donate

The PNH Global Alliance receives €250 per year as membership fees. The members are mostly volunteer organisations with very limited financial resources, if any. The work of the Alliance is undertaken predominantly by patients, who do this voluntarily alongside their paid jobs. Contributions will enable us to continue to outsource some administration and pay for travel costs so that ideally we can meet in person once a year. A tax receipt is provided on request.

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