Australia

Group Name: PNH Support Association Australia Inc

Website

 

Brazil

Group name: Association of Family Members, Friends and Serious Diseases (AFAG)

Website

 

China

Website

Email: info@pnhchina.org

Wechat public platform: PNH病友之家

QQ Group:37143981(Members only)187061197(Non-member)

 

Germany

Stiftung Lichterzellen

Website

PNH & AA eV

Website

 

India

For patients only:

Facebook group

 

Ireland

For patients only:

Facebook group

 

Italy

AIEPN Onlus

Website

 

Japan

Group name: PNH Club in Japan

Tel:+81-3-5651-7105 Fax:+81-3-5651-7106

E-mail:pnh-support@pnhclub.jp

 

New Zealand

Group Name: PNH Support Association of NZ

Website

 

Poland

Facebook page

 

Romania

Group name: The Association of Patients with Autoimmune Disorders

Website

 

Russia

Website

Facebook

 

Serbia

Group name: NORBs

Website

 

Scotland

Group Name: PNH Scotland

Website

Facebook

 

Spain

Website

Facebook

 

Taiwan

Group name: Taiwan Foundation for Rare Disorders

Website

 

The Netherlands

Website

Facebook

Turkey

Group name: PnhveAhüsileMücadeleDernegi

Website

USA

AAMDSIF

Website

Global Facebook Group run by U.S. patients (open to all patients)

Facebook group