Group name: Association of Family Members, Friends and Serious Diseases (AFAG).
Website
Email: info@pnhchina.org
Wechat public platform: PNH病友之家
QQ Group：37143981（Members only）187061197（Non-member)
Group name: PNH Club in Japan
Tel：+81-3-5651-7105 Fax：+81-3-5651-7106
E-mail：pnh-support@pnhclub.jp
PNH Global Alliance
By Address: APN Backoffice BV
Postbox 91
4000 AB TIEL
The Netherlands
Chamber of Commerce number 75270854.
Info available at www.kvk.nl
Bank NL77ABNA0877597847
The PNH Global Alliance receives €250 per year as membership fees. The members are mostly volunteer organisations with very limited financial resources, if any. The work of the Alliance is undertaken predominantly by patients, who do this voluntarily alongside their paid jobs. Contributions will enable us to continue to outsource some administration and pay for travel costs so that ideally we can meet in person once a year. A tax receipt is provided on request.
