Australia

Group Name: PNH Support Association Australia Inc

Website

Brazil

Group name: Association of Family Members, Friends and Serious Diseases (AFAG)

Website

China

Website

Email: info@pnhchina.org

Wechat public platform: PNH病友之家

QQ Group:37143981(Members only)187061197(Non-member)

India

For patients only:

Facebook group

Ireland

For patients only:

Facebook group

Japan

Group name: PNH Club in Japan

Tel:+81-3-5651-7105 Fax:+81-3-5651-7106

E-mail:pnh-support@pnhclub.jp

New Zealand

Group Name: PNH Support Association of NZ

Website

Romania

Group name: The Association of Patients with Autoimmune Disorders

Website

 

Serbia

Group name: NORBs

Website

Scotland

Group Name: PNH Scotland

Website

Taiwan

Group name: Taiwan Foundation for Rare Disorders

Website

Turkey

Group name: PnhveAhüsileMücadeleDernegi

Website

 

Global Facebook Group run by U.S. patients (open to all patients)

Facebook group