News - Global Alliance

Poland signed up as a member

27 October 2021 No Comments

The ten members are delighted that Jedni na milion – Stowarzyszenie pacjentów z PNH (One in a Million – PNH Patients Association) from Poland has

Two new members

1 September 2021 No Comments

The eight members are delighted that AAMAC from Canada and PNH Ukraine have signed up as members of the PNH Global Alliance. During our virtual

US signed up as a member

25 January 2021 No Comments

The seven members are delighted that AAMDSIF from the US has signed up as a member of the PNH Global Alliance. During our virtual meeting

We are a non-profit organisation, comprising PNH patient organisations all over the world

CONTACT

PNH Global Alliance
By Address: APN Backoffice BV
Postbox 91
4000 AB TIEL
The Netherlands

Chamber of Commerce number 75270854.
Info available at www.kvk.nl

Bank NL77ABNA0877597847

donate

The PNH Global Alliance receives €250 per year as membership fees. The members are mostly volunteer organisations with very limited financial resources, if any. The work of the Alliance is undertaken predominantly by patients, who do this voluntarily alongside their paid jobs. Contributions will enable us to continue to outsource some administration and pay for travel costs so that ideally we can meet in person once a year. A tax receipt is provided on request.